Latest update on Rocco Prestia's medical condition

Updates on Rocco

Wednesday, July 24, 11:00 p.m. Pacific time. Day #1.

Hi Everyone,

Click here to buy a souvenir Rocco T-shirt!Just got back from the hospital. Rocco is amazing!!!! He got the ventilator, one IV, one arterial line and several other miscellaneous tethers out tonight. He is making unbelievable strides. The medical team is astounded at how well he is recovering so quickly. He talked--yes he talked--to Tim and I for a few minutes in between cat naps. He is even telling jokes (they're sort of funny). When his nurse asked him how he was feeling, his reply was, "Nothin up my sleeve!" I asked him what he was talking about and he smiled and said he thought he'd do some magic. We all laughed. It was wonderful to sit at his bedside and have him hold my hand and tell him about the miracle that is now his life.

He will remain in intensive care until he is completely stable in all arenas. So far his new liver likes him just fine. After he is stable, he will go to a regular room for 3-4 weeks of intensive physical, respiratory, occupational, medication and other therapies to celebrate his new body/liver/life.

Then, he will go home and the next stage of recovery and hard work begins. He will have a 24 hour care giver that watches after him and his care. He will be resting and recuperating for quite a few months, all the while doing a little bit more each day as his body gets stronger.

I'll keep everyone updated each day. IT HAS NOW BEEN 24 HOURS! Hurdle #1 conquered with ease...

Thank you all for your amazing support.

I'm blowing you all a big kiss.

Katherine

Thursday, July 25, 2002. Day #2

Hi Everyone,

Rocco continues to progress in his recovery. Today he had some ice chips and is trying to get some much needed rest. The staff at the hospital are absolutely incredible. They are loving, caring and by his side for every need.

He wondered today if he was strong enough to keep going and recover. Mickey told him he that we believe in him. I know you all join me in that. It's quite an emotional, mental, physical and spiritual undertaking that Rocco is now being faced with. He has to be stronger than strong and more positive than positive. We constantly remind him that he is and that he can.

All of you do that as well with your cards, donations, letters and message on this chat. You are so wonderful. I know I keep saying it, but the truth is that you are.

Spoke with some family of the band today and they are going to rummage through their attics to find more items we can list on ebay.

Rocco's aftercare will have to be 24 hours for at least 4 weeks and maybe more. He will be in the hospital for at least 4 weeks. One of the nurses gently told me that it was such a great thing what all his fans were doing to raise money because, as she put it, "Liver transplant care is not cheap." She said it with love and humor, but I know she was telling us to keep up the good work.

I am so proud of all of us. Together, we are incredible.

I put up Ebay auctions today. 2 bass guitars, a photo and a signed Raiders cap from Art Shell. The url to find the items is: www.stores.ebay.com/id=52113434. That will take you to my store and the items are listed there.

I looked earlier and we already have bids on the Lakland Bass and the photo.

Sweet Dreams Bumpsters,
Katherine

Saturday, July 27, 2002, 2:00 p.m. Pacific time. Day #4.

Hi everybody, this is Rocco's brother Tim and I just got off the phone with my son DieHard. Rocco is now being prepared to be moved from ICU to a regular room as I'm writing this (less than four full days after surgery!*). His recovery has truly been remarkable. Now that he'll be in a regular room his kids will finally be able to see him. I'm sure this will be a great boost to his sprits. He's been asking to see them since he was able to communicate with us. I would like to take this opportunity to say that Tower fans are some of the greatest people around. Your support whether it be with prayers or donations has really touched my family's and my heart in ways that we will never truly be able to express. THANK YOU ALL. We'll keep updating as the good news comes in.

* Blue text inserted by Web Manager.

Sunday, July 28, 2002, 7:00 p.m. Pacific time. Day #5.

Hello All,

I visited Rocco today. He is such a miracle. We laughed together and marveled at the wonder of the things that have transpired since last week.

He expressed his gratitude for all that has taken place in his life this week. He said he was a fortunate man.

All I could do was smile and nod my head in agreement.

I told him that I was waiting to see the "walking on water" trick next week, given that by all reasonable expectations he should still be in ICU tethered to a dozen machines. We talked about how fast he is healing and I asked him why he thought that was occurring.

He said that he thought that it was a combination of the skill and purpose of the medical staff and all the energy that he has been getting from the prayers and well wishes of everyone. I agreed.

He ate today. Food on a tray, not out of a tube. He sat in the chair today. He was watching a baseball game on TV. He opened your cards and letters and smiled. He answered the phone. He joked with the nurses. He rested. He asked about the weather. We talked about how nice it would be to go swimming. Normal, everyday, miracle like things.

Honestly, in my career as a nurse, I have never seen anyone accomplish what he has in a mere 5 days after surgery.

Thank you all for your love, cards, letters, bids, donations, thoughts, wishes, energy, prayers, questions, answers, ideas and presence.

On my way home, I couldn't decide whether to laugh or cry or both. Thank you for allowing me to be a part of this wondrous miracle.

Sing me a song, I'm still dancin'
Katherine

Saturday, August 3, 2002, 1:00 a.m. Pacific time. Day #11.

Hi Everyone,

I apologize for the lag time between updates. Mickey and I have spent the past few days at the hospital getting as much information about liver transplant after care as a person can contain. Cedars Sinai Hospital has an amazing team of nurse educators.

Yes, Francis Rocco Prestia complete with new liver arrived home last night.

He has 24 hour care, enough stitches to qualify for Aunt Emily's Sewing Bee and a smile the size of Texas. The next month will be full of visits back to Cedars for lab work and clinic once a week, regaining strength, resting, healing and very hard work.

Rocco is being taken care of by his good friend Mick McEntee and family who have devoted their time, energy and home to him. He will have a caregiver during the day and Mick and family at night to assist him in getting back on his feet.

They are lovely people--kind, devoted and generous. They have a great dog, Ludwig, who just loves Rocco. As if that wasn't enough, Mick and his lovely wife have 2 young adults to keep everyone on their toes. It's the perfect place to be for getting well, friends to be nurtured by, a dog to snuggle with, and young folks to keep you hoppin'. He's so fortunate to have such great people in his life as we are to have Rocco in ours.

Thank you all for the incredible devotion that you continue to show for Rocco's medical fund. It is so needed. His medications alone for just a month come to over $2,900, which are just one tiny part of the aftercare costs that will have to be paid.

On one hand, it seems silly, given that the life and future of my dear friend has been reborn and restored and here we are looking at a medication bill. And, I know that it is reality, one that we will all get to embrace with humor and dedication.

Thank you for your kindnesses, energy, humor, laughter, wishes and love. Also, for all of you who sent cards, letters, presents---XOXOXO.

Amazed and Delighted,
And still dancin'
Katherine

Wednesday, August 21, 2002, 9:00 a.m. Eastern time. Day #29.

It has been almost one month since Rocco received his liver transplant. The previous updates above were copied from the Tower of Power Message Board (http://www.bumpcity.com/message_shell.htm). There have not been any updates posted on the Board lately which explains why there have not been any updates posted on this page. So let me give you my second-hand impressions from out here in Indiana.

I talked to Rocco three days last week--Tuesday, Wednesday, and Thursday. It is like talking with a complete stranger. You can HEAR the strength in his voice. Before the surgery, he barely spoke above a whisper and was difficult to understand. Now his voice is clear and strong and steady. He is laughing and telling jokes and talking about his next tee time (!), etc. The contrast could not be more stark.

I've actually seen a picture of Rocco that was taken last week. He is flush with natural looking color, very different from the yellowish, jaundiced coloration that he had the last time I saw him in Philadelphia back in April. He has in-home care daily while the family he is living with is away at work and school, so there is someone with him 24 hours a day. He is taking his anti-rejection medication daily, getting out for walks and short trips, etc. In other words, his progress continues to be steady, uneventful, and simply remarkable, by all accounts. His doctor removed some of Rocco's stitches last week.

I asked Rocco if he had picked up his guitar yet. He told me that he likes to hold the guitar against his body when he plays, and that because this area is still quite tender, he has not been able to do so just yet. But I can assure you that this is not for lack of desire. He said he hopes he remembers how! LOL!

Each time I get the chance to talk with Rocco, he expresses amazement and appreciation for the huge outpouring of love and affection (and financial support!). None of the progress described above would have been possible without the support of hundreds upon hundreds of people all over the world. This is not to say that he is out of the woods by any stretch of the imagination, but the things you have done (and continue to do) for him have given him strength, have given him courage, have given him a positive mental attitude, have given him hope for the future, and have given him personal dignity in the face of potentially crushing expenses and overwhelming odds. He is still facing many more months of care and recuperation.

In short, it is true that it has been 18 days since the last update posted on this page, but this is simply a case of “no news is good news!” Thank you for your prayers, your presence, your gifts, and your service! God bless you all.

Sincerely,

Bob Burchfield

August 29, 2002 Day #37

Hi Everyone,

Rocco and I spoke at length yesterday, so I thought I'd send our conversation your way. The timeline for healing has always been an amazing and elusive one for me. I have had many patients and clients ask, "When am I going to feel better?" "How long is it going to take for me to be back to normal?" There is never an easy and comforting way to tell someone, "It's your body, it's up to you!"

Rocco had a liver transplant on July 23rd. The "normal" course of treatment is 2-3 weeks in ICU. He was out in less than a week. Normal hospital stay is a month. He was home after Day 11. Aftercare involves 2-3 visits to the hospital a week for lab work, fine tuning and doctor visits. This usually happens for 2 months and then tapers to 3 times a month and so on. Rocco's surgeons after 3 1/2 weeks decided they didn't need to see him again for a month. He's down from 12 medications a day to 8.

I guess medically we are finding out what all of us have known all along. Francis Rocco Prestia does not follow the normal course. The stunning amazement comes for me when I sit and ponder the true miracle of all that has transpired. When Rocco told me yesterday what the doctor said, all I could mumble was, "Really, that's just stunning, wow!"

There is no logical explanation for the healing of this man. None. The truth is much more than logic. It is about faith, hard work, diligence, love, prayer, persistence, caring and one pointed desire.

You have done that. With your donations, your cards, your thoughts, your worry, your concern, your anger, your desire to care, your hard work, your late night computer virus tantrums, your passing thoughts and your love. Thank you. I really need a new word to express our gratitude. Until we invent one, "THANK YOU!"

Rocco got all his stitches out. He had over 54 abdominal stitches alone, out. In this surgery, there are 5 incision sites. His incisions are healing very well. He took his kids to the beach (with help) last weekend. He told me that everyday he gets a new surprise. He gets stronger, he feels better, this kink or that kink gets all worked out.

The next few weeks, Rocco will slowly begin the process (well, based on results, probably not so slowly) of creating his new life. We talked about his moving into a living space that was lovely--bright, happy, quiet. And, very soon, although not soon enough for most of us, we will be hearing from the musical side of him.

The new liver that he received, will never really be his own. The body knows that it isn't his and will be in what is known as the rejection process for the rest of his life. His immune system will be in a forever battle to maintain balance and fight the "new" liver. Thus, taking medications for anti-rejection will be a forever thing. Being a "patient" with doctors appointments and special care will always happen. This process of healing, although very quickly by most standards, will still be taking place for the next months and year. His new liver likes its new home, but we have to be ever vigilant and careful of its new owner. Rocco will never have a "normal" life like most of us take for granted, but he will have his life.

He needs you now as much as ever. His new liver can decide to give up at any time, especially during this first year. And, as I've told you, the anti-rejection meds and the home health care that he has to have is more than I make a month, more than most of us earn a month.

So, consider this letter a Vitamin B booster. Because, whatever you're doing-----WORKS! Keep it up, get busy, have faith, giggle, and dance. Rocco sends his love, appreciation and laughter. I am proud of him, I am proud of you, I am proud of us.

Still dancin'
Katherine

September 27, 2002 - Day #83

Dear Friends and Fellow Fans,

I am delighted to confirm what Donna Grund and others have already reported on the Message Boards: Rocco took the stage with Tower of Power for the last three songs of the San Diego show on Friday, September 27, 2002--just 83 days after his major surgery!

I don't want to let this occasion go by without taking the opportunity to point out that God answers prayers. What happened at Humphrey's last night was the result of thousands of people all over the world lifting Rocco up in prayer. I know of prayer groups all over the country that have been including Rocco regularly in their prayers. We've even received donations from some church groups. I pray now that Rocco's recovery will continue with no complications.

Larry Braggs contacted me in January and asked me if I would help Rocco. I said yes, because I firmly believed from the start that this was the humanitarian thing to do, it was the Christian thing to do (at least from my perspective and upbringing), and it was the RIGHT thing to do.

I know not everyone who reads this will embrace that statement, but that's OK with me. I know that people of all faiths participated in this fund-raising campaign--I believe that regardless of our various religious heritages, that most of us share the common desire to do something good for others when given the opportunity. Even if you are an agnostic or an atheist, you must surely understand that something special happened here that is bigger than all of us.

That makes it sound like it is over, doesn't it? Nothing could be further from the truth. We are only halfway to our fund-raising goal. The surgery bill came last Wednesday—by itself, it is more than our fund-raising goal. The doctors saved Rocco's life. But we've still got a lot of work to do.

We are witnesses to a true miracle! If you have not financially supported Rocco, I unashamedly ask you to make a donation to his medical fund by clicking on the "Make a Donation" button at:

http://www.francisroccoprestia.com/index.htm

If you have already made a donation, I offer you the most heartfelt "Thank you" that I can muster! And I unashamedly ask you to do anything else you can do to help Rocco.

Sincerely,

--Burchie

Bob Burchfield, Trustee
Rocco Prestia Medical Fund

October 28, 2002

Rocco Prestia on Oct. 25, 2002 at the Suncoast in Las VegasRocco's progress and recovery continues at a remarkable pace by all accounts. Last weekend he was able to make the trip from Los Angeles to Las Vegas for the three shows at the Suncoast Hotel. He was able to take the stage each night and play a couple of songs with his band (see October 25 photo at right, submitted by Bob Faulkner). It was a very emotional weekend for all in attendance.

I just want to emphasize that THE MEDICAL BILLS HAVE NOT STOPPED COMING IN. The doctors may have saved his life, but post-operative care is terribly expensive. The anti-rejection medication alone is about $3,000 per month. So Rocco still needs your help. Our goal is to wipe out these debts, give Rocco a clean slate, and get him back on his feet. Won't you help? Thank you for your show of support for Rocco!

Bob Burchfield

Copyright © 2002, Rocco Prestia Medical Fund. All rights reserved.
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Last update: October 28, 2002.